Spinal muscular atrophy (SMA) is a neuromuscular disease associated with nutritional status derangement and altered body composition. New drugs are changing the natural history of the disease, so now more than ever is important to focus on the correct assessment of nutritional status in SMA. We implemented a standardization process for the anthropometric measurement as part of our ongoing longitudinal study of growth patterns in SMA patients. It features a procedural manual, included in this communication, observers training and reliability assessment, of which we publish the values obtained in our pilot study. The standardization process was able to produce inter-observer reliability values in agreement with the literature and a procedure manual is now available for multicentre studies of nutritional status and body composition in SMA and possibly other pediatric neuromuscular disorders.

Anthropometric measurement standardization for a multicenter nutrition survey in children with spinal muscular atrophy / S. Bertoli, A. Foppiani, R. De Amicis, A. Leone, C. Mastella, M. Bassano, E. Giaquinto, G. Baranello, A. Battezzati. - In: EUROPEAN JOURNAL OF CLINICAL NUTRITION. - ISSN 0954-3007. - 73(2019 Jan 15), pp. 1646-1648. [10.1038/s41430-019-0392-2]

Anthropometric measurement standardization for a multicenter nutrition survey in children with spinal muscular atrophy

S. Bertoli
Co-primo
Writing – Original Draft Preparation
;
A. Foppiani
Co-primo
Writing – Original Draft Preparation
;
R. De Amicis
Conceptualization
;
A. Leone
Formal Analysis
;
A. Battezzati
Ultimo
Supervision
2019-01-15

Abstract

Spinal muscular atrophy (SMA) is a neuromuscular disease associated with nutritional status derangement and altered body composition. New drugs are changing the natural history of the disease, so now more than ever is important to focus on the correct assessment of nutritional status in SMA. We implemented a standardization process for the anthropometric measurement as part of our ongoing longitudinal study of growth patterns in SMA patients. It features a procedural manual, included in this communication, observers training and reliability assessment, of which we publish the values obtained in our pilot study. The standardization process was able to produce inter-observer reliability values in agreement with the literature and a procedure manual is now available for multicentre studies of nutritional status and body composition in SMA and possibly other pediatric neuromuscular disorders.
anthropometry; spinal muscular atrophy; measurement error
Settore MED/49 - Scienze Tecniche Dietetiche Applicate
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Utilizza questo identificativo per citare o creare un link a questo documento: http://hdl.handle.net/2434/613700
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