Within a mobile-technology enhanced educational framework, this study investigates needs and expectations of children (aged 8-14) with type 1 diabetes, and their parents, to define the functionalities of PAL Inform, a web-based monitoring module. The aim is to design it as a tool for parents to be informed on the educational progresses, as well on diabetes-related data, of their children without violating their values (privacy, trust, autonomy). Through a set of co-design activities, carried out with 39 children and 45 parents, it was possible to define which kind of information parents would monitor and children (especially pre-adolescents), in turn, would share, without compromising family dynamics: i.e. glycaemic values and trends, insulin doses, carbohydrates intake, generic emotional status, educational progresses on diabetes-related knowledge. Leveraging on these insights, a set of functional requirements was elicited for the future monitoring module implementation.

Sharing is caring: Designing a value-sensitive mhealth platform for sharing type 1 diabetes management within families / E. Oleari, C. Pozzi, F. Sardu, F. Sacchitelli, V. Sanchini, A. Sanna - In: MCCSIS Multi Conference on Computer Science and Information Systems / [a cura di] M. Macedo, L. Rodrigues. - [s.l] : IADIS Press, 2019. - ISBN 9789898533890. - pp. 143-150 (( Intervento presentato al 11. convegno International Conference on e-Health : 17th through 19th July tenutosi a Porto (Portugal) nel 2019 [10.33965/eh2019_201910l018].

Sharing is caring: Designing a value-sensitive mhealth platform for sharing type 1 diabetes management within families

V. Sanchini
Penultimo
;
2019

Abstract

Within a mobile-technology enhanced educational framework, this study investigates needs and expectations of children (aged 8-14) with type 1 diabetes, and their parents, to define the functionalities of PAL Inform, a web-based monitoring module. The aim is to design it as a tool for parents to be informed on the educational progresses, as well on diabetes-related data, of their children without violating their values (privacy, trust, autonomy). Through a set of co-design activities, carried out with 39 children and 45 parents, it was possible to define which kind of information parents would monitor and children (especially pre-adolescents), in turn, would share, without compromising family dynamics: i.e. glycaemic values and trends, insulin doses, carbohydrates intake, generic emotional status, educational progresses on diabetes-related knowledge. Leveraging on these insights, a set of functional requirements was elicited for the future monitoring module implementation.
Children; Focus Group; MHealth; Role Playing; Self-Management; Type 1 Diabetes;
Settore M-FIL/03 - Filosofia Morale
Settore MED/02 - Storia della Medicina
http://www.ehealth-conf.org
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Utilizza questo identificativo per citare o creare un link a questo documento: http://hdl.handle.net/2434/938497
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