Objectives: To identify patient-centered core domains for prospective longitudinal observational studies (LOS) in rheumatoid arthritis. Methods: Our working group held a virtual meeting in November 2020 to review data from a literature review and patient qualitative interviews, and to discuss strategies to move forward on domain identification and selection using the OMERACT 2.1 domain selection process. Results: Important candidate domains and subdomains were identified including in the areas of life impact. Consensus was reached on moving forward with a Delphi process. Conclusions: The meeting provided future directions to identify and select a core set of domains for use in LOS.

Development of a patient-centered core domain set for prospective observational longitudinal outcome studies in rheumatoid arthritis: an OMERACT initiative / S. Bruera, L. Carmona, M.A. Lopez-Olivo, T. Westrich-Robertson, L. March, J.B. Negron, R. Christensen, V. Strand, F. Ingegnoli, N. Goel, B. Shea, P. Tugwell, A. Leong, C.O. Bingham, C.L. Hill, M.E. Suarez-Almazor. - In: SEMINARS IN ARTHRITIS AND RHEUMATISM. - ISSN 0049-0172. - 51:5(2021 Oct), pp. 1113-1116. [10.1016/j.semarthrit.2021.08.003]

Development of a patient-centered core domain set for prospective observational longitudinal outcome studies in rheumatoid arthritis: an OMERACT initiative

F. Ingegnoli;
2021

Abstract

Objectives: To identify patient-centered core domains for prospective longitudinal observational studies (LOS) in rheumatoid arthritis. Methods: Our working group held a virtual meeting in November 2020 to review data from a literature review and patient qualitative interviews, and to discuss strategies to move forward on domain identification and selection using the OMERACT 2.1 domain selection process. Results: Important candidate domains and subdomains were identified including in the areas of life impact. Consensus was reached on moving forward with a Delphi process. Conclusions: The meeting provided future directions to identify and select a core set of domains for use in LOS.
cohort studies; observational studies; OMERACT; patient registries; patient-centered outcomes; rheumatoid arthritis;
Settore MED/16 - Reumatologia
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/2434/868616
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