Physician inertia is usually blamed for the underutilization of epilepsy surgery (ES) at the cost of increased patient disability and risk of mortality. Investigations on selected groups of intractable TLE patients and minorities suggested that patient beliefs may also limit access to ES. To assess acceptance of ES among “mainstream” patients, we distributed an ad hoc questionnaire to 228 adults attending epilepsy clinics and found widespread fears and misconceptions leading to unfavorable perception of ES, irrespective of diagnosis, seizure type, and degree of intractability. Moreover, while a group firmly rejected ES, the majority became more favorable when given further information about modality, rationale, and expected outcome of ES. Attitude changes correlated with patient's social profile. Neurologists are responsible for providing all pertinent information to potential surgical candidates as soon as indicated. Therefore, an untimely or inadequate intervention of the treating physician constitutes an additional barrier to optimal utilization of ES.

Acceptance of epilepsy surgery among adults with epilepsy : What do patients think? / G. Erba, P. Messina, E. Pupillo, E. Beghi, M. Canevini. - In: EPILEPSY & BEHAVIOR. - ISSN 1525-5050. - 24:3(2012 Jul), pp. 352-358. [10.1016/j.yebeh.2012.04.126]

Acceptance of epilepsy surgery among adults with epilepsy : What do patients think?

M. Canevini
Ultimo
Membro del Collaboration Group
2012

Abstract

Physician inertia is usually blamed for the underutilization of epilepsy surgery (ES) at the cost of increased patient disability and risk of mortality. Investigations on selected groups of intractable TLE patients and minorities suggested that patient beliefs may also limit access to ES. To assess acceptance of ES among “mainstream” patients, we distributed an ad hoc questionnaire to 228 adults attending epilepsy clinics and found widespread fears and misconceptions leading to unfavorable perception of ES, irrespective of diagnosis, seizure type, and degree of intractability. Moreover, while a group firmly rejected ES, the majority became more favorable when given further information about modality, rationale, and expected outcome of ES. Attitude changes correlated with patient's social profile. Neurologists are responsible for providing all pertinent information to potential surgical candidates as soon as indicated. Therefore, an untimely or inadequate intervention of the treating physician constitutes an additional barrier to optimal utilization of ES.
Epilepsy surgery; Intractable epilepsy; Patient attitude; Patient beliefs; Questionnaire; Survey; Adolescent; Adult; Aged; Brain; Epilepsy; Female; Humans; Male; Middle Aged; Quality of Life; Surveys and Questionnaires; Health Knowledge, Attitudes, Practice; Patient Acceptance of Health Care
Settore MED/39 - Neuropsichiatria Infantile
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/2434/827677
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