Objective: The research approach on rheumatic musculoskeletal diseases (RMDs) is challenging and patient involvement is an emerging issue to obtain relevant informa-tion to research. Despite growing interest in non-pharmacologic aspects of clinical research in RMDs, the patients’ perspectives are currently poorly explored.Methods: A cross-sectional no-profit online survey was devised to identify and rank the priorities for clinical research in RMDs according to patients’ perspectives. Patients were asked to rate the following topics: food/nutrition, air pollution, smok-ing, work activity, social participation, physical activity, emotional well-being/stress, alternative medicine, and patient-physician relationship. The survey was dissemi-nated by ALOMAR (Lombard Association for Rheumatic Diseases) between June and October 2019.Results: Two hundred RMD patients completed the survey. The topic most rated 188 (94%) was the doctor-patient relationship, considered very or extremely important. Other topics rated as follows: psychological well-being 185 (92.5%), physical activity 155 (77.5%), nutrition, eating habits 150 (75%), alternative therapies 144 (72%), work activity 144 (72%), environmental pollution 134 (67%), social life 121 (60.5%) and cigarette smoke 119 (59.5%). The topics considered relevant were perceived to be able to influence disease symptoms. Environmental pollution and smoking were con-sidered the most important for RMD prevention in 43.3% and 48.7% respectively.Conclusions: This survey highlights the relevance of several unmet needs and indi-cates that active patient involvement is essential to design successful translational studies and improve clinical outcomes.

Relevant non‐pharmacologic topics for clinical research in rheumatic musculoskeletal diseases: The patient perspective / F. Ingegnoli, T. Schioppo, T. Ubiali, V. Bollati, S. Ostuzzi, M. Buoli, R. Caporali. - In: INTERNATIONAL JOURNAL OF RHEUMATIC DISEASES. - ISSN 1756-1841. - (2020). [Epub ahead of print] [10.1111/1756-185X.13932]

Relevant non‐pharmacologic topics for clinical research in rheumatic musculoskeletal diseases: The patient perspective

F. Ingegnoli
Primo
;
T. Schioppo
Secondo
;
T. Ubiali;V. Bollati;M. Buoli
Penultimo
;
R. Caporali
Ultimo
2020

Abstract

Objective: The research approach on rheumatic musculoskeletal diseases (RMDs) is challenging and patient involvement is an emerging issue to obtain relevant informa-tion to research. Despite growing interest in non-pharmacologic aspects of clinical research in RMDs, the patients’ perspectives are currently poorly explored.Methods: A cross-sectional no-profit online survey was devised to identify and rank the priorities for clinical research in RMDs according to patients’ perspectives. Patients were asked to rate the following topics: food/nutrition, air pollution, smok-ing, work activity, social participation, physical activity, emotional well-being/stress, alternative medicine, and patient-physician relationship. The survey was dissemi-nated by ALOMAR (Lombard Association for Rheumatic Diseases) between June and October 2019.Results: Two hundred RMD patients completed the survey. The topic most rated 188 (94%) was the doctor-patient relationship, considered very or extremely important. Other topics rated as follows: psychological well-being 185 (92.5%), physical activity 155 (77.5%), nutrition, eating habits 150 (75%), alternative therapies 144 (72%), work activity 144 (72%), environmental pollution 134 (67%), social life 121 (60.5%) and cigarette smoke 119 (59.5%). The topics considered relevant were perceived to be able to influence disease symptoms. Environmental pollution and smoking were con-sidered the most important for RMD prevention in 43.3% and 48.7% respectively.Conclusions: This survey highlights the relevance of several unmet needs and indi-cates that active patient involvement is essential to design successful translational studies and improve clinical outcomes.
diet, emotional well-being; environment; participation; patient perspective; patient-physician relation; research; rheumatic musculoskeletal diseases; work ability;
Settore MED/16 - Reumatologia
2020
5-ago-2020
Article (author)
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/2434/757473
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