Background: The aim was to establish how patients experience the impact of spondyloarthritis (SpA) on work disability and working life. Methods: The survey was performed in 17/20 regions in Italy (1 January to 31 March 2013). A multiple-choice questionnaire was published on the official website of the sponsor - the National Association of Rheumatic Patients (ANMAR) - and hard-copies were distributed at outpatient clinics for rheumatic patients. Results: Respondents (n = 770) were of both sexes (56 % men), educated (62 % at high school or more), of working age (75 % aged ≤60 years), and affected by SpA. The most common types diagnosed were ankylosing spondylitis (AS) (39 %) and psoriatic arthritis (PsA) (36 %). Respondents were working full-time (45 %), part-time (8 %) or had retired (22 %); 15 % were unemployed (for reasons linked to the disease or for other reasons, students or housewives). Patients reported disability (39 %), were receiving disability benefits (34 %), were experiencing important limitations that were hindering their professional development/career (36 %) and some had to change/leave their job or lost it because of SpA (21 %). Employed respondents (n = 383) had worked on average 32.2 h in the last 7 days. More hours of work were lost over the last 7 days due to SpA (2.39 h vs 1.67 h). The indirect costs of the disease amounted to €106/week for patients reporting well-being/good physical conditions/improvement and €216/week for those reporting permanent impairment. Conclusions: Most patients were in the midst of their productive years and were experiencing considerable difficulties in carrying out their job because of the disease: half of them reported disability and one third were experiencing important limitations in their career perspective.
Patient-reported impact of spondyloarthritis on work disability and working life : The ATLANTIS survey / R. Ramonda, A. Marchesoni, A. Carletto, G. Bianchi, M. Cutolo, G. Ferraccioli, E. Fusaro, S. De Vita, M. Galeazzi, R. Gerli, M. Matucci-Cerinic, G. Minisola, C. Montecucco, R. Pellerito, F. Salaffi, G. Paolazzi, P. Sarzi-Puttini, R. Scarpa, G. Bagnato, G. Triolo, G. Valesini, L. Punzi, I. Olivieri, A. Ortolan, M. Lorenzin, P. Frallonardo, A. Giollo, A. Locaputo, S. Paolino, D. Simone, L. Quartuccio, E. Bartoloni, R.D. Luca, F. Bartoli, F. Sensi, R. Caporali, M.D. Carlo, R. Bortolotti, F. Atzeni, L. Costa, F. Ciccia, F. Perrotta, M. Gilio. - In: ARTHRITIS RESEARCH & THERAPY. - ISSN 1478-6354. - 18:1(2016 Apr), pp. 78.1-78.7.
|Titolo:||Patient-reported impact of spondyloarthritis on work disability and working life : The ATLANTIS survey|
|Parole Chiave:||Absenteeism; Presenteeism; Spondyloarthritis; Survey; WPI; Adult; Aged; Arthritis, Psoriatic; Employment; Female; Humans; Italy; Male; Middle Aged; Self Report; Spondylitis, Ankylosing; Surveys and Questionnaires; Absenteeism; Disability Evaluation; Quality of Life; Rheumatology; Immunology and Allergy; Immunology|
|Settore Scientifico Disciplinare:||Settore MED/16 - Reumatologia|
|Data di pubblicazione:||apr-2016|
|Digital Object Identifier (DOI):||http://dx.doi.org/10.1186/s13075-016-0977-2|
|Appare nelle tipologie:||01 - Articolo su periodico|