Introduction: Universally established comprehensive clinical bulbar scales objectively assessing disease progression in amyotrophic lateral sclerosis (ALS) are currently lacking. The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics. Methods: ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results: Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain. Discussion: We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence-based approach.

Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis / G.L. Pattee, E.K. Plowman, K.L. Focht Garand, J. Costello, B.R. Brooks, J.D. Berry, R.A. Smith, N. Atassi, J.L. Chapin, Y. Yunusova, C.E. Mcilduff, E. Young, E.A. Macklin, E.R. Locatelli, V. Silani, D. Heitzman, J. Wymer, S.A. Goutman, D.F. Gelinas, B. Perry, P. Nalipinski, K. Stipancic, M. O'Brien, S.L. Sullivan, E.P. Pioro, G. Gargiulo, J.R. Green. - In: MUSCLE & NERVE. - ISSN 0148-639X. - (2019 Jan 08). [Epub ahead of print] [10.1002/mus.26408]

Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis

V. Silani;
2019-01-08

Abstract

Introduction: Universally established comprehensive clinical bulbar scales objectively assessing disease progression in amyotrophic lateral sclerosis (ALS) are currently lacking. The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics. Methods: ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results: Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain. Discussion: We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence-based approach.
AAC; Bulbar; Guidelines; Speech; Swallowing
Settore MED/26 - Neurologia
Settore MED/32 - Audiologia
Settore MED/01 - Statistica Medica
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Utilizza questo identificativo per citare o creare un link a questo documento: http://hdl.handle.net/2434/616093
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