The Adult Carer Quality of Life Questionnaire (AC-QoL) : comparison with measures of burden and well-being, and Italian validation

Purpose: Family caregivers are essential assets in the rehabilitation process, and their psychophysical health should represent a concern for healthcare services. This study aims to investigate the psychometric properties of the Adult Carer Quality of Life Questionnaire (AC-QoL), Italian version, and its convergent-discriminant validity with measures of caring burden, resilience, health and well-being. Materials and Method: Participants were 591 parents (89.2% females; aged 25-69) of children treated as outpatients in 14 centers of “Istituto Medea - La Nostra Famiglia”, an Italian rehabilitation institution. They completed: AC-QoL, a 40-item scale assessing care-related challenges, resources and benefits; Caregiver Burden Inventory; Resilience Scale for Adults; Satisfaction With Life Scale; Health Survey SF-36. The psychometric properties of the Adult Carer Quality of Life Questionnaire were investigated through exploratory and confirmatory factor analyses and reliability evaluation; correlation coefficients assessed convergent and discriminant validity with burden and well-being measures. Results: The original eight-factor structure of the Adult Carer Quality of Life Questionnaire showed good adequacy and internal consistency; convergent and discriminant validity with measures of burden, resilience, satisfaction, physical and mental health were satisfactory. Conclusions: The Italian version of the Adult Carer Quality of Life Questionnaire is a reliable and valid instrument to assess caregivers’ perceived challenges and resources. As a parsimonious and easily administrable tool, it can be used to evaluate caregivers’ quality of life and related interventions.