Purpose: The aim of this study was to review the experiences of direct involvement in patient survivorship for treatment and research. Methods: This is a narrative-focused review of the following two recent experiences of patient involvement: the Chordoma Foundation and the Triple Negative Breast Cancer Foundation. Results: These two examples represent concrete experiences that patients have built to favor a real involvement in the care and treatment of tumors. These experiences are profoundly modifying how cancer research is conducted and draw attention to the psychosocial dimensions of health care. Conclusion: These examples represent the new scenario in which modern medicine faces completely new challenges, copes with new needs, and cooperates with new health care professionals. Implications: Involving patients in a new perspective raises practical and ethical challenges for organizations to work together, for health providers to be professionally skilled and for the government to promote safeguarding policies.

Decisions and the involvement of cancer patient survivors : A moral imperative / G. Pravettoni, I. Cutica, S. Righetti, K. Mazzocco. - In: JOURNAL OF HEALTHCARE LEADERSHIP. - ISSN 1179-3201. - 8(2016 Dec 07), pp. 121-125. [10.2147/JHL.S115434]

Decisions and the involvement of cancer patient survivors : A moral imperative

G. Pravettoni;I. Cutica;K. Mazzocco
2016-12-07

Abstract

Purpose: The aim of this study was to review the experiences of direct involvement in patient survivorship for treatment and research. Methods: This is a narrative-focused review of the following two recent experiences of patient involvement: the Chordoma Foundation and the Triple Negative Breast Cancer Foundation. Results: These two examples represent concrete experiences that patients have built to favor a real involvement in the care and treatment of tumors. These experiences are profoundly modifying how cancer research is conducted and draw attention to the psychosocial dimensions of health care. Conclusion: These examples represent the new scenario in which modern medicine faces completely new challenges, copes with new needs, and cooperates with new health care professionals. Implications: Involving patients in a new perspective raises practical and ethical challenges for organizations to work together, for health providers to be professionally skilled and for the government to promote safeguarding policies.
cancer; codesign techniques; empowerment; patient empowerment; patients’ association; skills
Settore M-PSI/01 - Psicologia Generale
Article (author)
File in questo prodotto:
File Dimensione Formato  
JHL-115434-decisions-and-involvement-of-cancer-patients-survivors--a-mo_120716.pdf

accesso aperto

Tipologia: Publisher's version/PDF
Dimensione 110.43 kB
Formato Adobe PDF
110.43 kB Adobe PDF Visualizza/Apri
Pubblicazioni consigliate

Caricamento pubblicazioni consigliate

I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.

Utilizza questo identificativo per citare o creare un link a questo documento: http://hdl.handle.net/2434/467377
Citazioni
  • ???jsp.display-item.citation.pmc??? ND
  • Scopus 5
  • ???jsp.display-item.citation.isi??? 5
social impact