ECFSPR 2024 Annual Data Report

he 2024 Annual Report of the European Cystic Fibrosis Society Patient Registry (ECFSPR) provides a comprehensive overview of the demographic and clinical characteristics of people with cystic fibrosis (CF) across participating countries in Europe and neighbouring regions. The ECFSPR reflects a broad collaborative effort, bringing together data from national registries and individual centres to support a comprehensive understanding of CF care. The Registry plays a central role in monitoring disease epidemiology, evaluating standards of care, and supporting clinical research and public health initiatives in CF. Through the collection of standardised, high-quality data, the ECFSPR enables meaningful comparisons over time and across countries and healthcare systems. The findings presented in this report contribute to a better understanding of the evolving landscape of CF care and aim to support clinicians, researchers, and policymakers in improving outcomes for people living with CF.