: A European LAM Registry would enable standardised data collection, support clinical research and facilitate transnational collaboration, establishing an optimal platform for advancing care and developing a coordinated trial network https://bit.ly/4no2xlr.
Access to lymphangioleiomyomatosis care across Europe: an ERN-LUNG survey of clinical practice, and the case for a European registry and trial network / D. O'Malley, E. Humbert-Dorfmüller, J.A. Barberà, A. Van Batenburg, E. Bendstrup, V. Cottin, D. Elia, A. Froidure, J. Grutters, S. Harari, F. Hernandez-Gonzalez, M. Kokosi, T.K. Lund, E.D. Manali, G. Meszaros, G. Van Pottelberge, E. Radzikowska, J. Sellares, A. Svenningsson, M. Veltkamp, T. Wagner, H. Hebestreit, C. Mccarthy. - In: ERJ OPEN RESEARCH. - ISSN 2312-0541. - 12:2(2026 Apr 03), pp. 1-4. [10.1183/23120541.01010-2025]
Access to lymphangioleiomyomatosis care across Europe: an ERN-LUNG survey of clinical practice, and the case for a European registry and trial network
D. Elia;S. Harari;
2026
Abstract
: A European LAM Registry would enable standardised data collection, support clinical research and facilitate transnational collaboration, establishing an optimal platform for advancing care and developing a coordinated trial network https://bit.ly/4no2xlr.
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