PURPOSE: Video-sharing sites have become increasingly important in recent years in providing information and orienting people's decisions relating to their health. Adolescents and their families use internet to obtain information on pediatric oncological diseases. METHODS: We describe the availability and type of video content and origin on YouTube relating to a particular set of pediatric neoplastic diseases, that is, rhabdomyosarcoma and soft-tissue sarcoma. RESULTS: A total of 149 videos were analyzed: 25 were considered as useful; only 1 video was produced by a doctor, whereas 82.5% were produced by patients or their families, in many cases for commemorating the death of a child. CONCLUSIONS: Our observations indicate that video-sharing sites have become tools, such as blogs and social media, that make it easier for patients to describe their impressions and experiences of the disease, and this could help other patients devise strategies for coping with the disease, providing them with support and opportunities for sharing information and resources

Videos on rhabdomyosarcoma on YouTube : an example of the availability of information on pediatric tumors on the web / C.A. Clerici, L. Veneroni, G. Bisogno, A. Trapuzzano, A. Ferrari. - In: JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY. - ISSN 1077-4114. - 34:8(2012 Nov), pp. 329-331. [10.1097/MPH.0b013e31825886f8]

Videos on rhabdomyosarcoma on YouTube : an example of the availability of information on pediatric tumors on the web

C.A. Clerici;
2012

Abstract

PURPOSE: Video-sharing sites have become increasingly important in recent years in providing information and orienting people's decisions relating to their health. Adolescents and their families use internet to obtain information on pediatric oncological diseases. METHODS: We describe the availability and type of video content and origin on YouTube relating to a particular set of pediatric neoplastic diseases, that is, rhabdomyosarcoma and soft-tissue sarcoma. RESULTS: A total of 149 videos were analyzed: 25 were considered as useful; only 1 video was produced by a doctor, whereas 82.5% were produced by patients or their families, in many cases for commemorating the death of a child. CONCLUSIONS: Our observations indicate that video-sharing sites have become tools, such as blogs and social media, that make it easier for patients to describe their impressions and experiences of the disease, and this could help other patients devise strategies for coping with the disease, providing them with support and opportunities for sharing information and resources
communication ; rhabdomyosarcoma ; information ; pediatric oncology ; YouTube
Settore M-PSI/01 - Psicologia Generale
Settore M-PSI/08 - Psicologia Clinica
nov-2012
Article (author)
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/2434/229165
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